- American Syringomyelia Alliance Project
 - Offers information, research news, and support for people affected by Syringomyelia, Chiari Malformation, and related disorders. - World Arnold Chiari Malformation Association
- Mission is to further the understanding of this potentially disabling condition.
- NINDS Chiari Malformation Information
- Chips Chiari Page
- Information and links, including actual photos of Chips decompression surgery.
- Arnold-Chiari Malformation
- Personal experiences with the condition and links.
- ACM HelpNet
- Support forum for Chiari patients and their loved ones. Includes message board and chat room.
- Carrie's Chiari Connection
- A connection for those affected by Chiari Malformation.
- Chiari Care
- The Chiari Treatment Centre treats those suffering from Chiari 1 Malformation, and educates patients, families, and physicians about this disorder and the options available.
- Chiari Connection International
- Chiari Connection International is dedicated to bringing emotional and tangible support and understanding to the patients afflicted with Arnold Chiari Malformation and its related conditions, such as Syringomyelia and Ehlers-Danlos syndrome, as well as to providing patients and their friends and families with current, accurate information explaining ACM and its associated diagnosis, treatment, and lifestyle.
- Chiari Institute
- The Chiari Institute is the world's first comprehensive, multidisciplinary centre for the management of patients suffering from Chiari malformation, a rare structural condition that affects the cerebellum; syringomyelia, a chronic disease of the spinal cord; and related disorders.
- Chiari People
- Chiari People was formed in 2004 to address the painful and debilitating structural conditions of Chiari 1 Malformation while providing support and encouragement to help people stricken with Chiari achieve their full potential.
- Conquer Chiari
- Comprehensive site providing information on Chiari Malformation, Syringomyelia, and related topics.
- NeurosurgeryToday.org: Chiari Malformation
- Find information about the different types of Chiari malformation, symptoms, diagnosis, treatment, and more.
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