- American Cleft Palate-Craniofacial Association
 - National organisation providing lay and professional services for cleft lip, cleft palate and other craniofacial deformities. - Australasian Cleft Lip and Palate Association (ACLAPA)
- Representing the interests of health professionals involved in the management of cleft lip and palate related conditions.
- Cleft Advocate
- Nonprofit organisation providing extensive educational and support resources for cleft lip/palate. Includes insurance and advocacy information and on-line family networking.
- Cleft Club
- Cleft lip and cleft palate support group for those born cleft and parents of cleft children. Includes mailing lists, message boards, chat, news, and more.
- Cleft Support
- Support and information for individuals and families affected by cleft lip and/or palate. Includes personal stories, links, pictures, and information.
- Craniofacial Foundation of Arizona
- Dedicated to providing financial and emotional support to patients and their families.
- FACES
- Provides information, support, resources, and financial assistance for persons with craniofacial disorders.
- Headlines
- Supports the following conditions, Apert Syndrome, Crouzon syndrome, Pfeiffer syndrome, Saethre-Chotzen syndrome, and single suture craniosynostosis.
- International Craniofacial Institute
- Provides treatment for craniofacial deformities, syndromes, trauma, and cleft lip and palate conditions.
- Let's Face It
- Information about resources and networks relate to craniofacial anomalies.
- MUSC Craniofacial Anomalies and Cleft Palate Center
- The Craniofacial Anomalies and Cleft Palate Centre at the Medical University of South Carolina provides optimal care services for patients with cleft lip and palate and other craniofacial anomalies through an interdisciplinary team approach.
- Pierre Robin Network
- Group of parents seeking to network with others looking for information and support on Pierre Robin Syndrome/Sequence.
- Smiles
- Support group dedicated to improve the lives of children with cleft lip, cleft palate, and/or craniofacial deformities.
- WideSmiles
- Nonprofit organisation providing resources, support, and information for those affected by cleft lip/palate, the fourth most common birth defect.
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